Eyeless Mind

Book Synopsis: "A must-read for any family facing the challenges of raising a child with any disability." Dr. Lotfi Merabet, director of the Harvard CVI Neuroplasticity research study, associate scientist at Massachusetts Eye and Ear, and associate professor of ophthalmology at Harvard Medical School"Eyeless Mind is an astonishing true story about an extraordinary family. Stephanie Duesing is a brilliant, warm, sensitive and loving advocate for herself and for her son, Sebastian." Dr. Barry Kran, professor at the New England College of Optometry and optometric director at the New England Eye Low Vision Clinic at the Perkins School for the Blind"A harrowing, heartbreaking, inspiring tale of mother and son..." - Meg Jay, PhD., author of best sellers Supernormal and The Defining Decade In January of 2017, Stephanie Duesing discovered that her straight A honor student, genius artist, and water polo-playing son Sebastian was almost completely blind and no one knew, not even Sebastian himself. He was fifteen years old, and just getting ready to enroll in driver's ed. Filled with terror for her son's safety, overwhelmed at the guilt of not knowing that her own son was blind, and also utterly baffled at the impossibility of the situation, Stephanie embarks on a journey to find answers. Eyeless Mind is a story about perception and what we as individuals and as a society choose to see or not see. A modern Everyman, Stephanie battles an indifferent and obstructionist medical establishment that has collectively turned a blind eye to the needs of tens of thousands of people in the U.S. alone. Persevering against horrific medical malpractice and abuse from ignorant and untrained medical professionals, Stephanie makes a major medical discovery while exposing an enormous public health crisis affecting millions globally.